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European Sickle Cell Disease Summit for Patients, Carers, and Patient advocates: Sept 24-25th, 2021 Theme: Challenges of Sickle Cell Disease in Europe ESCF Summit Day 1-September 24th |
Welcoming Remarks Concy Bwomono Newborn and Maternal Screening A Multi-National Review and Comparison A Canadian Perspective Keynote Improving Health Outcomes for Patients with Sickle Cell Disease in Europe Research and Clinical trial in General | Beyond Hydroxyurea New and Emerging Therapies Harmonising approaches to Newborn Screening in the EU Gulcin Gumus, Euordis Self Introduction Prof Corina McMahon, Childrens Health, Ireland
Digital Health ,Lifestyle and Behavioral Interventions in SCD | An Overview on Ern EuorbloodNet Initiatives for SCD The Irish Experience Prof Corina McMahahon, Children’s Health, Ireland. Q and A Session
UK NHS SCT Screening Programme & Collaboration with the Sickle Cell Society |
ESCF Summit Day 2-September 25th |
Europe-Prof Baba Inusa, Paediatric Haematology, King’s College, London | Mental Health in SCD: Support & Follow-up Beyond Emergency Department & Hospital Admission | Depression, Anxiety, and the Neuropsychological Effects of Sickle Cell Disease |
Holistic Treatments in SCD Herbal and Non Drug Remedies Q and A DAY 2 | Sickle Cell Disease Prevalence Stigma, Facts & Misconceptions Beyond Hydroxyurea New and Emerging Therapies Dr Melanie Kirby, Sickids Hospital,Canada | COVID 19 and Sickle Cell Disease What You Need to Know |
OUR MISSION
Our Mission is to engage in a united, unique and strong voice for Sickle Cell patients, family members, carers, and all national patient organisations of people with Sickle Cell Disease. |
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