Sickle Cell and Mental Health
Mental Heath is a neglected issue in SCD comprehensive and preventative care. Little research has been done on the social, emotional, and psychological effects on the impact of mental health and well-being on SCD. ESCF has embarked on a research project to better recognize, understand, and support the mental health of individuals living with SCD.
This research study aims to characterize mental health disparities faced by individuals living with SCD, with a special focus on the mental impacts of the main symptoms and complications faced by affected people. ESCF welcomes partnerships with expert clinicians, psychologists, researchers, patients and everyone interested in this topic.
Sickle Cell and The Mind
We co-organized a conference on April 24 to talk about mental health aspects and assess patient interest in this topic. Several topics were discussed:
1. Patients have noticed the strength, determination and resilience of people with sickle cell disease and what gives them this strength, namely the desire to live, to preserve their essence the importance of social, family, spouses, relatives.
2. Stakeholders and the audience also discussed the strategies put in place to manage the disease when they are alone with themselves or people who are unfamiliar with the disease.