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How it started

The idea and proposal for the establishment of a patient led umbrella organisation began in October 2019 in Hamburg Germany. Further discussions and telecommunications lead to the decision to officially register as an organisation in February 2020. However, the unprecedented beginning of the Covid-19 pandemic disrupted planned events, leading to a hold off and re-structuring to enable alternative registration of the umbrella organisation.

2020 Virtual Launch

The European Sickle Cell Federation, was finally registered in Dublin, Ireland on the 5 th of June 2020 as a company limited by guarantee without shares. Launched virtually to the public officially on World Sickle Cell Day 2020, 19th June 2020, and with a follow-up first official educational webinar on the 20th of June 2020.


Inaugural Summit in September 2021

ESCF celebrated its first year of existence as umbrella organisation for Sickle Cell Disease in Europe on the 5th of June 2021 and will be holding its first inaugural European Sickle Cell Disease Summit for patients and patient advocates in September 2021.


Our Mission is to engage in a united, unique and strong voice for Sickle Cell patients, family members, carers, and all national patient organisations of people with Sickle Cell Disease.

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