Welcome to The European Sickle Cell Federation
One. United. Voice.
A European umbrella network of Sickle Cell Disease patient organisations with One United Voice.
The European Sickle Cell Federation (ESCF) was founded earlier this year to represent individuals living with Sickle Cell Disease in Europe. It is the first entity of its kind representing those living with Sickle Cell Disease in Europe.
HOW IT STARTED
The idea and proposal for the establishment of a patient led umbrella organisation began in October 2019 in Hamburg Germany. Further discussions and telecommunications lead to the decision to officially register as an organisation in February 2020. However, the unprecedented beginning of the Covid-19 pandemic disrupted planned events, leading to a hold off and re-structuring to enable alternative registration of the umbrella organisation.
The mission is to engage in a united, unique and strong voice for Sickle Cell patients, family members, carers, and all national patient organisations of people with Sickle Cell Disease and related conditions in Europe by promoting, enabling, enhancing and fostering of their ability to improve the quality of health, life, and services for all patients. READ MORE
70,000 PEOPLE IN EUROPE
TRAINING & AWARENESS
SICKLE CELL HAS NO COLOUR
...it's in the blood