The mission is to engage in a united, unique and strong voice for Sickle Cell patients, family members, carers, and all national patient organisations of people with Sickle Cell Disease and related conditions in Europe by promoting, enabling, enhancing and fostering of their ability to improve the quality of health, life, and services for all patients.
The association shall be the united voice of all new and existing Sickle cell patients, parents and organisations in Europe, to promote, enable and foster their needs, through the provision, promotion and strengthening of a strategic and collaborative alliance among all Sickle Cell patients across Europe.
Promotion & Strength
To promote and strengthen health literacy of Sickle cell among all patient organisations within Europe, medical and scientific professionals, service providers, government departments in every European country to combat the effects of Sickle cell disease as a public health priority, ensuring elimination of inequalities and discrimination to care.
Empower & Encourage
Enable, empower, and encourage active participation and involvement of patients and patient groups in promoting the development of new strategies, frameworks, policies, and scientific research towards Sickle cell treatments, and management, based on patient centred healthcare to improve the quality of life for all.
Work with major stakeholders in all European countries to establish and promote the urgent need for universal new-born screening for Sickle cell disease and other anaemias, for early interventional programmes and better patient outcomes.
Help Urgent Treatment
To advance, promote and encourage the urgent need for blood, bone marrow and stem cell donation among all European citizens and residents of African, Asian, or Mexican heritage and non-indigenous Caucasian to help in the treatment of all those in needing this specific medical treatment.