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List of Member Organisations
SEA by My Friend Jen
SEA by My Friend Jen

Contact: Jenica Leah
Country: United Kingdom

www.myfriendjen.co.uk
info@myfriendjen.co.uk
 

 

USHINDI Sickle Cell Victory ODV
USHINDI Sickle Cell Victory ODV

Facebook: Ushindi Sickle Cell Victory.
Contact person: Aghate Wakunga
Country: Italy

ushindi.scd@gmail.com

THADREV
THADREV

Contact: Clementine P
Country: Italy

www.thadrev.com
info@thadrev.com

Association Suisse Drepano
Association Suisse Drepano

Contact: David Issom
Country: Switzerland

ASAFE
ASAFE

Contact : Antonio Arenas García 
Country: Spain

asafefalciformeinfo@gmail.com
https://www.asafefalciforme.org

Sickle Cell Intervention
Sickle Cell Intervention

Contact person: Elizabeth Koroma
https://www.facebook.com/SCI04
Country: United Kingdom

www.sicklecellintervention.co.uk
info@sicklecellintervention.co.uk

Fédération SOS GLOBI
Fédération SOS GLOBI

Country: France

www.sosglobi.fr
contact@sosglobi.fr
 

 

 

THALSIFO
THALSIFO

Contact: Beatrize Amlacher
Country: Austria

Sickle Cell Welfare Forum
Sickle Cell Welfare Forum

Contact: Daniel Nyakutsey
Country: United Kingdom

info@sicklecellwelfareforum.com

APPDH (ASSOCIAÇÃO PORTUGUESA DE PAIS E DOENTES COM HEMOGLOBINOPATIAS)

Contact person: Dalila Costa
Facebook/Instagram: APPDH Hemoglobinopatias (@appdh.pt)
Country: Portugal

https://www.appdh.org.pt/
sede.appdh@gmail.com

Collectif Drépanocytose ASBL
Collectif Drépanocytose ASBL

Contact Person: Mimi Minsiemi Maboloko
https://www.facebook.com/collectif.drepanocytose
Country: Belgium

https://codrepa.wixsite.com/collectifdrepano
collectif.drepanocytose@gmail.com

Interessengemeinschaft Sichelzellkrankheit und Thalassämie e.V.
Interessengemeinschaft Sichelzellkrankheit und Thalassämie e.V.

Contact: Elvie Ingoli
Country: Germany

info@ist-ev.org
 

Voices of Sickle Cell
Voices of Sickle Cell

Contact: GE Ömür
Country: Netherlands

www.voicesofsicklecell.com
oicesofsicklecell.info@gmail.com
 

 

Sickle Cell and Thalassaemia Ireland
Sickle Cell and Thalassaemia Ireland

Contact : +353894203682
Country: Ireland

www.sicklecellireland.ie
info@sicklecellireland.ie
 

OUR MISSION

Our Mission is to engage in a united, unique and strong voice for Sickle Cell patients, family members, carers, and all national patient organisations of people with Sickle Cell Disease.

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